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Awareness Personal Stories

Creating awareness for a cause is up to all of us. MyWalkGear.com offers a forum for you to share stories about your recent or upcoming event.

How Do I Tell My Story?
In 3 easy steps you can publish your own personal story or event and share it with all your personal Facebook fans.

  • Step 1: Click the tell my story link found atop each page and fill in the details of your event.
  • Step 2: Review the your information.
  • Step 3: Publish your event!
Tell your own story and share with others.

61 Personal Stories Sort By: 
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kristine z - chesterfield, MO
I have systemic Lupus. My life has been turned up side down

Paige H - West Columbia, SC
Funny thing about Life --- My Story by Paige Cain on Monday, April 2, 2012 at 9:31am · Have you ever thought YOU were in complete control over YOUR life and to the point of needing no one and being invincible? And then out of nowhere GOD throws you a curve ball and teaches you how WRONG you are! WELL that was me sitting in that blue room waiting on the doctor to "give me the news" and then came my curve ball.....this my story I m not seeking pity or sympathy only maybe a little understanding as I continue...I figured he'd tell me I was fixable but then he used words like MANAGEABLE and LIVEABLE then I knew it was far more serious. Say what? PARKINSONS rolled off his tongue like butter - you can live with it he said -- WAIT - PARKINONS?? ME? at 37? MUST be a mistake --- nope no mistake and since that day I have been fighting - I don't listen to the negativity nor the "others" stories no offense but everyone is different with this "condition" and I know the LORD will make a way...so they say there are stages and me well I m in STAGE 1 or 1 1/2 and I don't plan on moving up anytime soon so I pray....It takes me about 20 mins to get dressed on a good day and never wear button up shirts(please) and tying my shoes thats a whole nother story...my gait is off balance but hey last year I could barely walk at all and I was missing out on living...never going out, depressed, no self esteem, angry at GOD, never seeing my kids play sports bc I couldn't manuever the stands, SURVIVING but not living..BUT I found a new doctor who gave me hope and today my GOOD days far outweigh the bad and I am LIVING =) I wish life at times was different BUT I m blessed---a WONDERFUL family who loves and cares for me(i love ya'll) -- SPECIAL friends and people in my life who see me as a person not a charity case and love me unconditionally - a CHURCH family who have been there for me thru it all with prayers and support - customers who have cared about me and supported me on many levels for 25 years and a working family who gave me a chance and for that I am grateful....this year I haven't missed one game and my kids well they are great of course=) and my reason and the ones who give me the WILL to fight- they encourage and inspire me daily and I m proud of all 3 of them and thankful to be here to see them all grow and change - yes even on the craziest days when their rooms aren't clean or they don't seem to listen to advice etc- I am still thankful.I could dwell on the negative or of what may come with the progression of this condition == but why should I be so selfish because for every bad day I have somewhere someone has it 10x's worse and I am LIVING no cane no wheelchair I walk maybe sometimes slow but hey I get there..and I am praying that not my will be done but HIS will in all I do And yes I am human I do worry and think about what 'ifs" but in some way we all have our own "what ifs" and Ii refuse to allow doubt and worry to control my life and rob my joy..so life goes on NEVER take it for granted or those around you that love you- NEVER think you know it all and need no one - you don't and you do -- NEVER sweat the small stuff seriously is it worth making you miserable, bitter or unhappy -- probably not --- we are all here for PURPOSE there are no mistakes. LIVE - Love - forgive - Life is too short not to --------- thank you

Calvin N - Calvin's Angels - Alexandria, VA
I'm writing my story because it needs more awareness I was diagnosed with anal cancer on July 27,2009 this was one month after we lost Farrah Fawcett to the same cancer now I want to draw awareness to this cancer it was too painful not to talk about. I can't even seem to find awareness tee shirt to show I'm a proud survivor but this year I will be doing my first Relay For Life in Alexandria,Va and I will gladly shout out I had anal cancer I will not be afraid nor ashamed to say it, after all I did'nt choose this cancer nor does anyone chooses cancer I just want more awareness it's very important to me.

lisa r - center moriches, NY
My youngest son is turning 19 and has pdd.He is a great kid.When he wants to he can be loving and caring.That happens rarely,but when it does its wonderful.He started college in sept and all of a sudden he was making friends.I was thrilled.In febuary the unthinkable happened.He was charged with stalking a girl he went to high school with.She was a great friend to him and his go to person when he had problems at home.The campus they go to is small and she is saying that because he and a friend were waiting outside her class for two other friends he was stalking her.She had him kicked out of the school so she can attend and now there is also a criminalcase.My son went from a happy college student to a depressed young man.he stays in his room all day.He is regressing again.I dont know what to do.We have a great lawyer for the criminal caase,but the school thing is killing him.He misses his friends and the school.He wasnt a great student,but the social part of it was great.On top of that my husband and i are getting a divorce and im moving out of state.He choose to stay with his dad,but as a mother i feel im deserting him.I have been his only advocate until now.Any advice would be helpful.

Deroline V - Xavier - Jacksonville, FL
The Inspiring TRUE Story of a mother and her battle to raise her two sons, the eldest, an honor student, talented and obedient, and the youngest, an angel of 17 years and 200 pounds "Severely Autistic." As she insists on carrying a "normal” life while she is struggling daily with its circumstances, countless nights of sleeplessness, aggression and destruction stages, poor health (hospitals, doctors and multiple medications). Although some people thought her life was irrational and they advised her to internalize her angel, her unique personality seemed to be the key to coping with public criticism and rejection. Until one day, the depression was taking an abyss from which only the Faith and Hope could lift her up. Everything falls apart and divorce is inevitable. Her eldest son is accepted by one of the best universities in the state and she is out of work. In the silence of the night, alone, in tears, exhausted and broken, she calls heaven for New Forces to continue her battle ONE DAY AT A TIME. She gets up with a new face, FAITH, giving her heart and letting Jesus into her life and to carry her load. A NEW OPPORTUNITY, GOD HAD A PERFECT PLAN AND HER LIFE START TO CHANGE, A TRUE MAN OF GOD CAME TO COMPLEMENT HER LIFE, THE LOVE ARRIVED IN A SUPERNATURAL WAY… SHE LEARNED THAT IF LEMONS FALL FROM HEAVEN TO MAKE THE BEST LEMONADE!...My dream is to have this in a Big Screen and to help families with Autism, with a Ministry Xaver Foundation. Just help me Pray for it. God bless you all!

Dianne F - Gracefuls - Renton, WA
I was Diagnosed 8-4-2000 with MS and will be doing my 11th Walk this year. On April 6th 11-3 pm Come to Sams Club in Renton to purchase a snack or buy some earrings. All proceeds go the the MS Society for the April 14th Walk

gwendolyn s - Evart, MI
So I am the single mother of one child. Eryk he is 8 years old, and very special to me. Hes my whole family. He is loving, smart, friendly, compassionate, active, loyal, and Eryk has autism. I was getting between three and five calls a day from his school about how "bad" my child was by the time he was in first grade. It seemed to me that the school displayed no discipline to me because the things they were saying my child was doing was not even like him. Eryk was a bit tempermental, but so was I as I child. They kept pushing me and pushing me to take him to Community Mental Health and get Eryk put on Ritalin or something...Well I have a problem with that. I dont take pills unless they are needed and I pass psychotropic meds to my clients at the Adult Foster Care home I work in and I am here to tell you they dont work like tv says they do... The school didnt do it out right but at first acted like it was bad parenting on my part, that my child could not sit down and listen to them, I always thought if they got a teacher that would tell him to sit and listen and actually followed through with class room rules, he was pushing his desk around the class constantly rearranging it, and they didnt make him stop by the end of his stay in this school they had given him two more desks so he was moving three around instead of two. But for all the time the teacher claimed he was a terrible distraction for the rest of her class, he got perfect grades. Well I suggested that we begin testing Eryk for what ever the issue may be and we found that we could not get an accurate IQ test, and that, apon observation in his class, that Eryk has a very very good memory. We took Eryk to B.R.A.I.N.S. In Grand Rapids Michigan and had Eryk officially tested and seen by a man who works speciffically with autistic children all year round. Right away it was pointed out to me that Eryk is rare because he displays emotion, even resentment for my job because it keeps me away from home. They diagnosed Eryk "High Functioning" autism and said he had ADD and there is never going to be an accurate IQ done on Eryk because he simply can not focus it takes alot of thoughts to complete one thought for Eryk because his brain is like an onion. it just triggers more and more layers the more he thinks about a particular layer...I also found that Eryk is not the only one in my family who has this issue. I have found that alot of the things my family suffered with my father and his harshness and downright unemotional responses make alot more sence the more I learn about what autism really is, I find that I myself with all the melt downs I had as a child, and all the times I was mad at myself because I simply never seemed to get what everyone else did because it never seemed that way to me. The loud buzzing lights in school, the easy to space out and stare at what appeared to be nothing when in reality so many thoughts would happen at one time and I just simply had to stop and process. The School Eryk Started out in is the one I did and I had to start bussing Eryk to a nearby town for AI classes where Eryk has only gone backwards at because Eryk is not Lower functioning they dont know how to deal with him, because he is fluent in emotion they claim he is not autistic, because my son has meltdowns they put him in time away three to upwards of six times a day, he refuses to tie his shoes now where before he learned by three. He is not showing excelled learning anymore, and I truely think it is because he is being misunderstood by those who are supposed to be specialists. My small community mistakenly lumps Autism With mild retardation I feel, and they have set my son back. They never even recognized this in me as a child, and their answers for it all is drugs, I never took these things and I function well in society with out pills, I have not had a true melt down in so long I cant even remember when, but I know I still dont see the world the same, I get terrible headaches as does my son, and the lights still buzz too loud, but day by day the more I understand the more I grow and function well, and the more I help Eryk grow and function well, I just pray that small towns like my own can get some education before they bury the children with the issues my son has in special education for the mildly retarted (which just means slow if you look it up in dictionary) They are being wrongfully lumped in with people who are not as smart and need to go to school to learn how to take care of personal hygeine (which is litterally a class there how to wash with soap) I have seen Eryk blink and get the answer to a math problem just in blinking, his reading is awesome. I feel Eryk is smarter then most of his teachers. I pray everyday that someone will see that they dont know what they are doing and that I can find better education for my child then the ignorance that is being displayed. If I can hold a job and control my emotions, and I was not even recognized, just imagine what Eryk will do when the right people finally notice his needs, and the ignorance displayed in my small town community becomes obsolete. Eryk is a lesson for every one, he is not a stereotypical autistic child most people dont see it untill i point it out, and there are so many out there like us, undetected, not understood, and lots of fingers being pointed but I will tell you one day, with places like this and others more people will get to voice how ignorant our society really is, and one day we can quite having people ask us why we dont disipline harder...

Coleen F - Kelli & Katrina - Carmichael, CA
Very excited & happy to say that I just filed for a Non Profit 503c to develop "Wild Horse Feathers Farm" for Autism. A 10 acre Farm near Oroville,California

shawn f - Hiking for Multiple Sclerosis - Springville, UT
I was diagnosed with MS in August of 2009, a few weeks before my wedding. Any one of us that faces a disease knows the difficulty in believing and accepting a diagnosis. It was no different for me. I went through all of the bereavement stages. And when I finally stopped feeling sorry for myself I decided that I could best help myself by also helping others. My website is: az817.org Please follow our blog. And so the idea for the "Big Hike" arose one day as my husband and I were hiking through the Grand Canyon, almost two years later. The Big Hike is an 817 mile hike through the Arizona Trail. Why am I doing this? Because I feel that it is not only important to raise awareness to MS but also to encourage others to embark on their own "adventures". Each one is different and just as important. I have been very fortunate in my life and I realize that because I am blessed I can also help others.

Carol S - Never give up - Bristol, CT
I was diagnosed with MS 3 years ago, and it was a total shock to me and my family because it does not run in my family. Through my time that I have had MS, I have had many ups and downs, but i always get through it, and i have my family here for me to help me through it. I have met a lot of nice people through MS week and MS day and meetings that i can call my second family. It is nice to hear other stories from people that have MS also so that we can relate our stories and and share good and bad times, and things that you can do to feel better. I wish that a cure can be found for this awful disease, but we need to raise money to have the help to cure it. I am going to be a captain of a team for the walk MS in Connecticut on April 22nd. So if anyone wants to donate and give that donation through my team I would really appreciate it so my team can get credit for it. You can email me at sweetchef76@yahoo.com.


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